Childhood Neurology Center
Here at Northwest Florida Research group we specialize in research and care for child neurology under the direction of Dr.Ben Renfroe, Dr. Weldon Mauney, and Pediatric Nurse Practitioner and Certified Clinical Research Coordinator Genei Bougher.
For more information on our child Neurology Center, click below to visit our site.
Clinical Trial Info
CenterWatch – provides unbiased information on clinical trials including a listing service of currently enrolling studies.
ClinicalTrials.gov – this is a service of the US National Institutes of Health. It is a registry and database on clinical studies conducted around the world.
Center for Information and Study on Clinical Research Participation – CISCRP is a non-profit organization that offers information on clinical research to the public, patients, medical/research communities, the media, and policy makers.
Neurological Muscular Disorders
Neuromuscular diseases affect the function of muscles due to problems with the nerves and muscles in your body. The most common sign of these diseases is muscle weakness. Some neurological muscular disorders include: Charcot-Marie-Tooth disease, Multiple sclerosis, and Myasthenia gravis. If you or your child suffer from a neurological muscular disorder, they may qualify to participate in a clinical study. READ MORE >>
Qualified participants include:
- Those diagnosed with a neurological muscular disorder
- Those currently under the care of a physician for a neurological muscular disorder
Additional criteria apply
Those that qualify are seen by a board-certified physician at no cost, have access to possible new treatment for epilepsy and are compensated for time and travel.
This refers to any one of a number of neurologic disorders that appear in infancy or early childhood. These disorders permanently affect body movement and muscle coordination. Cerebral palsy is not caused by problems in the muscles or nerves. It is caused by abnormalities in the parts of the brain that control muscle movement.
Most children with cerebral palsy are born with it, although it may not be detected for months or years later. Other children may develop it in the first few months of life from brain infections, or head injuries.
Common symptoms include:
- Lack of muscle coordination when performing tasks
- Abnormal gait such as toe walking, or dragging a foot or leg
- Increased or decreased muscle tone to all or part of the body
- Developmental delays
- Stiff, tight muscles
- Exaggerated reflexes
United Cerebral Palsy– UCP organization
Learn more about this condition by clicking the links above or explore the possibility of participating in an Cerebral Palsy study.
Rare Neurological Disorder
In addition to researching potential treatments for more common neurological conditions such as epilepsy or migraines, one key area of focus for Northwest Florida Clinical Research Group is a group of neurological diseases categorized as “rare.”
Let’s briefly explore what rare neurological disorders are, how they’re defined, and the critical role that clinical trial participants play in identifying emerging treatments.
What is a rare neurological disease?
A rare neurological disease is defined as a condition that affects less than 200,000 Americans. READ MORE >>
We’ll also encourage you to contribute to our important work by joining one of our many ongoing clinical trials. We rely on your participation to develop the transformative therapies that enable affected patients to live fuller, longer, more productive lives.
According to The Migraine Institute, over 30 million Americans battle migraine headaches. They affect an estimated 40+% of females at some point in their lives, and about 20% of males. At any given point in time, up to a quarter of US households have at least one member impacted by migraines.
Migraines can have significant negative effects on quality of life (QOL). They are ranked as the #6 leading cause of disability worldwide.
Here, we’ll discuss what migraines are, how they’re diagnosed and treated, and how they can manifest in children. READ MORE >>
If you would like to participate in a migraine study click below to see if you qualify.
Navigating epilepsy and its many symptoms – including recurring or chronic seizures – can be a tall task, especially for newly diagnosed patients and their caregivers.
Seizures vs epilepsy: what’s important to understand?
The terms “seizure” and “epilepsy” are often intertwined, but they actually have distinct meanings.
A seizure is a single event due to an abnormal discharge from the brain.
Epilepsy, on the other hand, is a syndrome of recurrent seizures.
It’s important to understand that every individual with epilepsy has seizures, but not every person who has a seizure has epilepsy.
Seizures can be caused by numerous conditions and injuries. They also vary widely by type… READ MORE >>
Epilepsy Foundation – National Website
Epilepsy Foundation – Florida
Learn more about this condition by clicking the links above or explore the possibility of participating in an epilepsy study.
Participate in Northwest Florida Clinical Research Study
Welcome to Northwest Florida Clinical Research Group! We conduct clinical
research trials to advance health. There are lots of reasons to participate in a