I remember it like it was yesterday. In was a breezy day in May. The sun was shining and the kids were anxious were to get back outside as we sat in the doctor’s office waiting for the dreaded diagnosis. “Skye has Dravet Syndrome.” Those four words knocked me off my feet, and I still

When your child has Tourette’s Syndrome(TS), life at school can be a challenge. From feelings of embarrassment, struggles with workload, and instances of bullying, school can be a scary place for both you and your child. Establishing good communication, mutual respect, and an overall understanding of the disorder between educators, peers, and your child will

For most people, the most frustrating component of an epilepsy diagnosis is its unpredictability. Anxiety and stress levels that are a part of daily life without epilepsy suddenly reach new heights when the fear of seizures and potential falls are added to the mix. Though epilepsy doesn’t have to have an effect on all of